Well, Amber! You are now a Big Sister to your Baby Brother Cory! I know you will love him and when he gets alittle older, you'll have lots of fun playing with him! Give yourself and him a big hug from Mammaw! Love, Mamma Jennelle

Hi Chris and Abby,

Our daughter Amber Holly is now 4 years old, she was diagnosed at 6 weeks. Amber Faith is beautiful. Our Amber is just fine, she got her first set of glasses at 5 months and now 4 years, they are a real part of her. The glasses go dark in the sun - which helps a ton. We use plenty of sunblock in summer and genrally she prefers to be in the shade. We have a great opthalmologist that she goes to once a year. Generally she copes well as she does not know any better. Amber is quite clumsy and get a couple bumps etc.! She is doing well a nursery school, she just needs to be close to everything so that she can see it. Thanks for a great site. From Chris and Mandy Regel in JHB, South Africa

Hi,

I added a link to this site on our website that I set up for our daughter Lyra. Please let me know if that is okay.

Thanks,

Mashawna

I have seen this weblink on the NOAH AOC webboard. I am Charles Tinkler Jr aka: Kromagnun. I am a firm believer in nutrition having something to do with improving our conditioin with albinism. If you would go to the NOAH AOC webboard and check out my reply to your thread, you will see some additional information on my reply thread that I personally think that every person with albinism should see. Please keep in mind that everyone is not going to agree with what you are doing but some people will. It's good to see that someone else is thinking the same way I do about nutrition and albinism.

Peace

Kromagnun

The website is great. Your daughter is ADORABLE. Thanks for the info. I have a daughter with albinism also (she's 4 1/2) I was already giving her the DHA supplements, but I am now adding the seaweed and Lutein and Xeaxanthin to it. We're on NOAH as ToriLori.

Hi, My name is Melanie. I have a 14 mos old daughter with albinism also. If you don't mind me asking. What is your daughters estimated vision?

Could you also tell me where to get the seaweed? Does it come in pill form? I am still breastfeeding my daughter and I take dhea in pill form. My daughters estimated vision is around 20/80. thank you for your time and your wonderful website!! your daughter is precious! melanie

HEY--YOU ALL DO NOT KNOW ME--I SAW YOUR POST ON NOAH WITH THIS WEB ADDRESS ON IT--I HAVE A 5 MONTH OLD SON WITH ALBINISM--AND I LOVE TO SEE PICS OF OTHER CHILDREN AND HEAR OTHER PARENTS EXPERIENCE WITH THIS--AMBER IS A LITTLE DOLL!!! WE LIVE IN ARKANSAS AND I WAS WONDERING WHERE YOU HAD HER SURGERY DONE AT--DR. HERTLE IS THE ONLY ONE I HAVE BEEN TOLD ABOUT AND IT IS LIKE 14 HRS FROM US--BUT MY SOME HAS NYSTAGMUS NOT STRABISMUS--YOU HAVE A GREAT SITE!!

LEA ANN

Oh Amber!! It was sooo good to see you and Mommy and Daddy this last weekend! I had alot of fun playing with you, especially ring around the rosie and "I'm gonna get you" ... I can't wait to see you in May!!! Love, Mamaw Jennelle

Abby,

I have spent the entire afternoon looking at your online scrapbook! It is soooo cool! I love the painted tummy photos. Chris is a really good artist (painter)too!

AMber has grown so mucha nd I am so hapy to know you and have her in PAL class! I can't wait until baby Corban comes. I love his name. Thanks for all the support you give me in PAL and for your great ideas! I am so blessed to know you guys!

MARGARET VINSEL

OH! I can't wait to see you, and I have another month to wait!! Oh, please April, please hurry up and pass by!! Love, Mamaw Jennelle